Interviews

A Conversation with Gunnar Esiason

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I want the younger generation to know cystic fibrosis isn’t a death sentence. Your life is what you make it, especially with lung disease. If you want to be sad, then be sad. If you want to be happy, then be happy. There is no excuse not to smile or praise God for our lives. Gunnar proves we can accomplish our dreams, despite our unusual and unfortunate circumstances. So, lets listen!

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Who is Gunnar Esiason?

Gunnar is the son of retired American NFL quarterback, Norman (Boomer) Esiason. He is twenty-six years old and living with Cystic Fibrosis. He is currently the director of the patient advocate program at the Boomer Esiason Foundation in Garden City, New York. Their mission is to heighten awareness, education and quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.

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Personal Blog

Women & Living with Cystic Fibrosis

Living with cystic fibrosis my whole life hasn’t been an easy road traveled, that’s for sure. Today, I’m here to share a whole other set of issues I struggle with on a daily basis, as a woman living with CF. These are my honest and sincere feelings. This post was definitely challenging and even uncomfortable to write at certain points, but if I can help at least one woman, then its all worth it.

Career & Making a Living

I missed a lot of school, due to being sick for several years; I barely made it to my high school graduation. After such a stressful year, trying to pass several tests, the last thing on my mind was applying for college, which raised an important question; did I really want to go to college? What if I made it through college and couldn’t maintain a job afterwards. I never know when I’m going to have a bad day. My stomach issues could flare up; my blood sugar could be too high or low or I could be just plain tired, which seems to be happening a lot lately. I have a consultation scheduled next month with the sleep study clinic. Just another appointment added to my calendar full of them.

If I attended college, how on earth would I pay back my student loans? Did I want to risk being far into debt, with no way to pay it back? My short answer was, no. I decided college wasn’t the best choice for me. I qualify for disability checks, but it’s barely enough to pay less than half the rent, food and necessities. Not to mention, a cell phone bill that I can’t live without!

Office jobs are best for those living with CF. You get to sit in a nice air conditioned space, you can take your medications and do breathing treatments right at your desk.

I’m thankful for my creative talents that have allowed me make a few bucks over the past few years. I’ve sold several pieces of jewelry and during the holidays, sets of Christmas cards. I enjoy creating projects for others, but I’m always pondering, Is this good enough to sell?

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