Poems

My Lungs Are Made For Breathing

I was lying in bed a few nights ago, when a random idea managed to make its way through my tunnel of thoughts. My mind wanders a lot before bedtime. Sometimes of memories, books I’ve read, shows I’ve watched, or what I want to eat the next day. I seem to always formulate my best concepts during the early hours of the morning. I’m a night owl.

That particular night I was disappointed at my myself for disposing a poem I wrote a few years ago. I thought it was lousily written, so I crumbled it, and tossed it away, over a year ago. I sat in bed, staring at the wall, desperately trying to remember what I had written. All I managed to recall was that it was about breathing with new lungs. I sighed heavily, thinking, Oh well, I can write a new poem. Then, suddenly I came up with the title, my lungs are made for breathing. Anyone who suffers from cystic fibrosis knows our lungs simply suck at being lungs. Our lungs are definitely not made for breathing well, but new transplanted lungs is a different story.

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Personal Blog

Women & Living with Cystic Fibrosis

Living with cystic fibrosis my whole life hasn’t been an easy road traveled, that’s for sure. Today, I’m here to share a whole other set of issues I struggle with on a daily basis, as a woman living with CF. These are my honest and sincere feelings. This post was definitely challenging and even uncomfortable to write at certain points, but if I can help at least one woman, then its all worth it.

Career & Making a Living

I missed a lot of school, due to being sick for several years; I barely made it to my high school graduation. After such a stressful year, trying to pass several tests, the last thing on my mind was applying for college, which raised an important question; did I really want to go to college? What if I made it through college and couldn’t maintain a job afterwards. I never know when I’m going to have a bad day. My stomach issues could flare up; my blood sugar could be too high or low or I could be just plain tired, which seems to be happening a lot lately. I have a consultation scheduled next month with the sleep study clinic. Just another appointment added to my calendar full of them.

If I attended college, how on earth would I pay back my student loans? Did I want to risk being far into debt, with no way to pay it back? My short answer was, no. I decided college wasn’t the best choice for me. I qualify for disability checks, but it’s barely enough to pay less than half the rent, food and necessities. Not to mention, a cell phone bill that I can’t live without!

Office jobs are best for those living with CF. You get to sit in a nice air conditioned space, you can take your medications and do breathing treatments right at your desk.

I’m thankful for my creative talents that have allowed me make a few bucks over the past few years. I’ve sold several pieces of jewelry and during the holidays, sets of Christmas cards. I enjoy creating projects for others, but I’m always pondering, Is this good enough to sell?

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Personal Blog

Celebrating 10 Years with my New Kidney

Today is yet another big milestone in this wonderful blessed life of mine. I’m celebrating ten years of living with my transplanted kidney from my very own mother. My kidney function began slowly declining shortly before my lung transplant in two thousand seven. Doctor’s told me, it was likely I would need a kidney transplant, sometime after receiving lungs. What they didn’t know, is just how soon after I actually needed a kidney. Due to the high doses of anti-rejection medication, following my lung transplant, my kidney function quickly declined drastically and I needed dialysis right almost right away. I went to Cincinnati Children’s hospital for dialysis three times a week for three hours. A short time later, my mom went through several tests and imaging procedures. She was a perfect match! On July second two thousand seven, my life was saved for the second time. Only this time, instead of a stranger, it was my mom! After all the pain and suffering I endured for 5 years, which, seemed like a lifetime to me, I was finally free of visiting the hospital numerous times a week.

I was ecstatic when I walked into my kidney transplant clinic, for my recent appointment and saw this new bulletin board on the wall:

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Books

Book of the Month-Oola for Women

What is Oola?

Oo’- la \ n. adj. \ 1 a : derived from the expression ohh la la! b : state of awesomeness c : a life that is balanced and growing in the key areas of health, finances, career, relationships, and well-being d : a destination (i.e., getting to Oola) 2 a : describing actions, insights and goals that lead to a balanced life (ex: That’s so Oola) 3 a : the ultimate plan for achieving balance in an unbalanced world.

Troy Amdahl and Dave Braun are known as, the Oolaguys. They are the co-authors of the international best selling book Oola: Find Balance in an Unbalanced World. These men travel the country in a 1970 VW Surf Bus, spreading the motivational Oola message, while collecting written dreams on stickers that cover the vehicle. You can follow Dave (@OolaSeeker) and Troy (OolaGuru) on social media.

Oola VW Bus

My featured book of the month is definitely in my top favorites, of self-help genre. I received my copy from Faithbox subscription box, which unfortunately went out of business last month. If you’ve found yourself struggling recently in any area of your life, I recommend this book for you. Oola will completely transform how you live your daily life. You will learn about the 7 key areas of life; fitness, finance, family, field (job), faith, friends and fun (hobbies). It seems simple, right? The fact is, life is never smooth sailing. Dave and Troy will teach you about the 7 Oola Blockers; fear, guilt, anger, self-sabotage, envy, and lack of focus. Blockers are like waves in the ocean that keep us from sailing smoothly, what we all wish for. They also teach us about the 7 Oola Accelerators; gratitude, love, discipline, integrity, passion, humility and wisdom. Accelerators are like the propellers that keep our boat moving. While I was reading this book, I quickly realized how certain areas of my life have been beyond blessed, as well as, other pieces that could use far more attention and assistance. As you learn about the Oola life style, you will read true stories by incredibly talented, brave and inspiring women just like you. Order a copy today. You will find yourself committed, stress free and happier than ever while reaching your ultimate Oola goal!

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